09-04-2019 02:43 PM
Often a balance, I know @Sherry , and I am sure you are aware that sometimes things that our loved ones do not see as pertinent may well be and are best mentioned. You could always make an appointment for yourself (or ask for a longer appt if you are going for something else) and explain your own concerns to GP. Even if the neuro was not comfortable treating the condition, clearly articulating this and arranging appropriate diagnostic tests with cc's going to alternate neuro may have been helpful to set things in motion. The GP may also be happy to arrange any such tests for hubby and depending on the result may be able to get you in for an early appointment (or send you to A&E). It might well be your GP is unaware that neuro 1 is not amenable to treating acute conditions and knowing this might help them in their clinical practice with other patients
Asking for clarification around medication too might be helpful Sherry - in particular to check if there are alternatives available to the bloat/rage option. Sadly sometimes there is not and weighing up risk v benefit is all that can be done.
I have found that if I don't speak up I feel I am sending myself a message that my opinion doesn't count - and I can end up feeling quite resentful which does not sit well for future appointments. The opposite is true - my opinion does count and in the case of my husband if I understand things (which often includes the need to talk about things) it makes for better care for him. As you are also aware, being the primary caregiver, we know the patients far better than the doctors, that psych patients are notoriously bad historians and that we can offer insights that can prove pivotal in their treatment.
09-04-2019 04:47 PM
I do hope your GP hs some frther ideas on what to do for hubby @Sherry It is quite disgusting that you were both treated with such contempt in what is understandably an incredibly difficult position for you both. I know there is nothing more you can do but see your GP and hope to get into this other neourologist
Such a lovely thing you did for your brother and his wife - a lovely reminder of their girls lost and something that shows them you are thinking of them in this really tough time
09-04-2019 07:52 PM
I really hope that your GP can hrlp you with your husband. Thinking of you at this tough time.
09-04-2019 10:06 PM
Big hugs and much love @Sherry i dont know what to say thatll help but im hearing you and walk with you through this. That pendent sounds so beautiful though ❤
10-04-2019 09:17 AM
10-04-2019 09:21 AM
Here's a picture of the gold plated rose I gave my brother and his wife. The one I ordered looked very much like this and comes in a lovely display box as well. Anyway I loved it, and I think they do too. I'm glad.
Perhaps more like this one ... only in pink.
10-04-2019 02:00 PM
12-04-2019 05:41 PM
12-04-2019 09:01 PM
wow that is really beautiful. @Sherry
My S3 and his partner had tattooed the 3 names of their unborn babies ( triplets they had lost at 22 weeks) on their arms
13-04-2019 05:21 PM
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